Friday, August 22, 2008

What a week...


Thomas enjoying HIS icee.


Thomas enjoying his icee AND Jon's icee (while Jon was at the wave pool with Mama)


These geese were pretty bold but it made for a good language opportunity. We would give this goose 1 piece of food...we would give those geese 3 pieces of food, etc.



These were the geese that preferred to stay in the water. They also got fed, along with ducks and some fish, too! We are definitly going back to this park...we had a fantastic time talking about everything that was around us.


On Sunday Jonathan and I went out for a few hours doing some school shopping while Thomas and Dad were at home..playing and having fun. About 2hrs into our shopping my phone rings ~ it was Jim. He goes on to tell me that Thomas pulled both ears off and when he went to put them back on the window is reading H6. I tell him that means that the coils have come in touch with each other but once he puts them back on his head they should be fine. He than tells me that it was still showing H6. I told him that was impossible and it was probably an H2 or H1 and the batteries needed changing. I told him I would be home in a bit and that he could try swapping batteries so Thomas could hear.
Jonathan and I got home and Thomas was playing (quietly) in the middle of the living room with his right processor on. I called him and he didnt respond. I started waving my hand so he caught a glimpse of movement from the corner of his eye. He saw me and ran over and gave me a huge hug. I sat down to check out what was going on. I about LOST it!!!! Jim had the processors on the WRONG ears. I know this can happen and that I should be more understanding but I made it (almost) foolproof. WHen Thomas received his 2nd CI I put a basketball sticker on his right side...so that whomever was watching him if/when the processor came off would know that the CI with the basketball sticker goes on the right ear...make sure the sticker is facing you when you put the CI on. I even told him that before I left. I called him over to show him his mistake. I hope that was a lesson learned and it won't happen again.
Tuesday we went to the waterpark ~ Jon, Thomas, myself and my Mom. We had a blast and we really enjoyed our cabana. My Mom went and bought the boys each an icee. My Mom and Jonathan went back in the wave pool and Thomas and I stayed in the shade. While Jon was away Thomas had fun drinking from both of their cups. I had to take a few pics of Thomas...doing cheers with the two cups and smiling...knowing that Jonathan would flip out if he knew what Thomas was doing!!!
Thursday was Jonathan's first day of school and Thomas was pretty upset when we dropped Jon off and we pulled away from the school. So we came home and ate some breakfast, did some one on one therapy (played a bit), cleaned up and went to the store. I told him that we could go to the park before we picked Jonathan up so he was happy. When we got to the park he climbed up the steps and walked over to the slide...I kept saying to him "wait, Thomas" but he didnt look over. Darn it..his CI's must have turned off or the coils fells off. I followed him up and seen both coils on. I looke at the left side...it was on. I looked over at the right side..it was off. I went to turn it on and it didnt turn on. I knew the batteries were not dead since we just replaced them the day before. I went to press the button again and SURPRISE...the entire battery assembly had falled OUT! I searched the park and the car..nothing. UGH. At that moment I thought.."good thing he is bilateral or else he would not be able to hear for the next few hours". We were already up by Jon's school so running home and driving all the way back up was not going to happen.
He did fine with just 1 CI but I could definitly tell the difference with just the 1. He had problems finding my voice but after a few tries he would find me and hear what I was saying. Now I am paranoid with the batteries...I make sure they are REALLY pushed in.

Monday, August 4, 2008

Wearing "ears" on the ears

It has been 3mths since Thomas' 2nd CI was activated. He has been wearing his right(1st) processor with the snugfit/babyworn set up for about the past 8mths. It took a few months of wearing the entire processor pinned to his shirt with the long cord and coil. We eventually started using the snugfit when the babyworn was sent to us.
When Thomas was initially activated back in April he wanted nothing to do with anything on his left ear. So we went back to what we did with the right side.....pinnned the processor to his shirt with the long cord and coil. While we were on vacation he startd pulling the coil off..ALOT! A few days before we came home he pulled the entire thing off and wanted nothing to do with it. He went a few days with only 1 "ear" so when we finally got back home I switched out what I could and also attached the snugfit and babyworn. Last Tuesday I put his right ear on...no problem as usual. I went and picked up the left CI and showed it to him. I slipped it on his ear and he slid down the bed and ran into the living room and started playing. NO problem at all!
I am thinking that with wearing the processor on his shirt he was getting alot of "bad noise" (rubbing from his car seat straps, his shirt rustling, etc) we were spending alot of time in the car driving from place to place and that is usually when he would pull the left processor off of his shirt (we have a few shirts that are now ruined with two big holes in the back from him pulling so hard that the pin would start ripping the fabric...oh well)
It has been almost 1 week and so far (knock on wood) no problems!!!!
We had Jonathan's birthday party this past weekend (today is his actually birthday...Happy 9th Birthday Jon) and I had received alot of comments on how talkative Thomas was and how clear his speech is becoming. We have been trying to get him to repeat things that he has said when they are not too clear. "Thank you" used to come out as "ahh uuu" after some repeating and help he now says "ank you"...still have some problems with "th". He is doing great with multiple commands...can you pick up the dinosaur and give it to Daddy? Can you take your plate and put it in the sink and than put your tray in the kitchen? (after snack time). Although a few plates have been chipped by Thomas helping clean up after dinner...he insists on putting the dishes in the sink ~sometimes not too gentle!
It is amazing how far he has come. To think a few years back at how helpless I felt ~ whew...how far we have come!!!